Today we are joined by Rebecca Stewart, an Elevator (Aberdeen) Accelerator Founder who is developing Rare Revolution, working to bring about wide-reaching change in the lives of those suffering from rare diseases and the people supporting them.
Rebecca Stewart - Rare Revolution Magazine Founder:
I first heard about Elevator through LinkedIn and I was intrigued to find out more. Although we had already published the magazine we were looking for support to help us develop the skills and resources required to grow the business and realise it’s full potential.
I sent in the application for Elevator's Accelerator programme and was invited to attend the Boot Camp Day. Being accepted on to the programme was both exciting and terrifying in equal measures.
We were thrilled to have made it into Cohort 7 but were worried if we could keep up with the workload and it we would feel out of our depth.
So far we have found the experience hugely beneficial. It has assisted us to 'get our ducks in a row' and analyse parts of the business we had neglected. Elevator's Accelerator has taken us out of our comfort zone (in a good way) and helped us make some great connections. Not to mention, the environment created by Elevator where we work with other like-minded people in a dynamic space is a pleasant change from working alone in my tiny home office.
Our hope for the Accelerator Programme is to enable us to establish our model as a viable self-sustaining business that provides a voice for those with rare diseases.
Here at Rare Revolution, we are on a RARE MISSION.
We want to see how many companies will join us to pledge their support of Rare Disease for their employees.
So, why should your business be interested in Rare Disease?
With 1 in 17 people affected by rare disease, this is more relevant to your business that you realise.
3.5 million people in the UK alone have one of over 7,000 rare diseases. So even if it isn’t obvious in your workforce, the chances are your employees and work colleagues could be facing or know someone facing complex health challenges, isolation, a lack of access to information and a lack of support.
Did you know...
That over 85% of rare diseases are genetic and over 75% occur in childhood?
That 30% of children with a rare disease will die before their 5th birthday and that rare disease accounts for 35% of deaths in the first year of life?
Or that in the UK, 6 children a day are born with an undiagnosed syndrome (SWAN – Syndrome without a name) and 95% of all rare diseases do not have one single approved treatment.
In 2012, my nephew was diagnosed with the rare genetic condition; Xeroderma Pigmentosum (XP). This small but significant change in his DNA propelled both my sister and I on a different trajectory, and there began our rare disease journey.
Since then we have been on a rare mission both in support of the XP community through our charity Teddington Trust and with our wider rare disease mission to give a voice to the 350 million people around the world living with rare through our free accessible resources, projects and communities.
So, how can your business do one small thing to help millions of people living with thousands of disorders?
Come together for the Rare Revolution!
In celebration of Rare Disease Day on the 28th of February help us reach our target of 100 companies in 2018 - pledging to a #rarerevolution with two easy steps.
1. Make our free rare disease resource available to your employees by sharing this link via your website or internal communications and let your employees know they can subscribe for free atwww.rarerevolutionmagazine.com
You can read the digital edition of Rare Revolution Magazine HERE
2. Pledge to support Rare Disease employees in your workspace. Let us know what you are doing to show your support via email or social media using the hashtag #rarerevolutionworkplaces and use the Graphic provided.
Thank you!!! Rebecca and the Team at Rare Revolution!
You can learn more about Rare Disease Day by watching this video: